Mysterios blisters

At the same time, Lyn got her abscess tissue coming to the surface, around the wounds are, she was getting clear blisters. No one thought much of anything. I though, it was part of healing process…

Some of them were as tiny as quoter inch diameter, but big one was like inch diameter. The liquid in the blisters were clear and they just pop and go away.

No one knew what they were including nurses and her doctor. I guess no one has ever seen…I certainly didn’t know anything about that…

So, we just left them alone…hoping they would just automatically disappear in near future…..But…

As you may guess, these blisters would be a long journey as well…

Consequesnce of seizure

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As a consequence of Lyn’s seizure, two major things happened.

One , blood test. One of the nurse came next day since we reported the hospice, she took the blood sample. We thought Lyn might jump as the needle went to her arm, but she was as calm as she could be.

The other was increment of seizure medicine…

Make matters worse, next week the nurse came back and got more blood sample and increased her seizure medication dosage again…

Not good at all…

Is there alternatives?

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Typically, people who are in hospice are perceived to live only 6 months. Of course, there is exception to that.

One day I challenged Lyn’s husband. If he thinks she would live to do more things here on this earth. Because he is the only one who can make choice for Lyn.  His answer was yes. But, how…???

Lyn was in her wheel chair sitting outside while Lyn’s husband and I were talking….

I was start talking to him about alternative healing since medical treatment she was getting was just keep her going down hill. No improvement.

I had a chance to explain to him about some of the supplements that can help her. Not just regular vitamins but something special.

Her husband had been giving her “vitamins.” One of them is chewable vitamin you can get from any stores.

But, this chewable vitamin was made synthetically that her body cannot absorb the vitamin. Also, there has to be communicator to use right vitamin properly in her body.

I guess he didn’t like what I said.you could tell he was a bit upset…

Make things worse, as we went to check on Lyn, she was having seizure…

Not good…

ending and begining

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Ending and beginning are like best friends!

As Lyn’s bed sore was ending (healing), the abscess on her left hip start surfacing to create about 4 inch diameter circle necrosis tissue. It looked mean and bad. Fortunately (?) Lyn didn’t seem to be in pain.

One of the dumb question people ask at her condition (she cannot say anything) is that is she in pain???

I don’t know. Maybe…because she cannot express herself…So, I don’t know.

But, this abscess was something new to her husband and me. I thought first nurses didn’t really know what to do…a shame. After a few weeks of complaining, finally one of the nurse must think it was bad enough that they needed to do something. SO, she finally got us saline solution and gauge to start pulling out the necrosis tissue.

This journey would be the drama itself…ha ha ha

How much?

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How much does your loved one worth?

The Right answer should be priceless. it doesn’t matter how much cost for your special loved one…

Is that really true?

We have life to live, budget to adjust….

Not just us as a care giver, family member, friends etc.

I am start thinking that our price may be cheaper than what I may be hoping for…then, as your loved one passed away, we cry that we would trade everything we have to get your loved one back…sad…

Then, the hospice service. Between, insurance, hospice, government etc, they are only willing to spend so much on people…

When I think of that, how much do we really worth in our society???

Bed Sore

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One of the fight we had since July was her bed sore on her behind…

New Air mattress came with new hospice service. e heard so many good things about this mattress to to fight against the bed sore…But, her bed sore was so mean that it wanted to stay so bad! We used aloe cream, baby paste for the sore etc we tried pretty much anything you can find from pharmacies…

So, as Lyn and her husband friend’s nurse came, she introduced us with new ointment. This is prescription. So, we thought we should try!

We started putting on her behind and started laying her on her side way more, tried to air out as much as possible…

It worked!!! But, this ointment was not carried by the hospice. So, when the head of the nurse in  this hospice came, we talked about it. And, blessing from God, somehow she agreed to get us!

So, that what we have used to fight her bed sore…but I guess the tube is pretty expensive that she wanted to cut back some. So, she started introduce new compound to mix with…

The COST is one of the hardest challenge in this care giving community…Don’t you think?

Hard choices…

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Here is one of my hardest choice as a care giver so far…

During September 2011, Lyn’s husband had said someone they knew would come visit them to take my place for a few weeks. So, what he meant was that he didn’t want to pay me and didn’t need me there. I knew he was trying to cut cost…so, I guess I was the cost…

The problem was I needed the money to live. The other bigger problem was that I knew I was the best one to take care of Lyn. Including her husband, no one can be as willing, patient, enough to feed her, talk to her, read to her etc…

As you may realize, just a few weeks, but this a few weeks could make Lyn’s condition worse.

That what I was afraid of since I was her friend…

So, here was my choice. Should I still go knowing that I don’t get paid but for Lyn’s sake? Or, should I stop…

I needed to think about it so hard as well as pray very hard…

I didn’t want to take granted for what I did for Lyn. I was upset…

But, then here was the conclusion I came with…

I have responsibility to Lyn. I am not doing for her husband or anyone else but Lyn and God.

So, this a few weeks I came diligently, and did what I usually did.

I’m not telling here to work for free. But, there is certain responsibility to certain situation. And, there is blessing to it!

Sometimes I felt embarrassed about what I did just because… I asked myself over and over if my ego/ pride was in my way…

This woman who came was a nurse. It made me feel even a bit worse….

She is a body builder and on the diet so her eating habit was quite crazy…

But, we got through this a few weeks. No one died. No one got hurt! We all survived through…..!!!

Then, here is the blessing. God is so good that Lyn’s husband did pay me after all. And, Lyn stayed in tact. So, thankful!!!

Somehow, care givers seem to be take for granted. I don’t like it! I guess since then I am aware of how to get better respect in this care giving field.

On the way of recovery

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Today is April fool as you may know…I’m not good with April fool day…It’s not my nature…

So, instead of the April fool, I want to write something quite positive here today! And, it may sounds too good to be true…but truth here!

As I have been writing this blog about Lyn, I’ve been writing about what had happened starting from beginning of July 2011. So far I had caught up till August.

In next several blogs will be how Lyn was going down. So, the dark age will be coming…BUT, that’s not the end.

As of April 2012, we are under much brighter sunshine. Lyn is actually getting better that I can almost start dancing here…LOL

Knowing what I know combined with the faith Lyn, her husband and I have, truly anything is possible!!! Love it!

Adventure

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It was the end of the August of the last year, we went to an adventure.

Our destination of adventure was…..

Guess what!

A Hospital for Lyn’s check up.

Lyn has not been out for a long while…last time she went out was the last time she was taken to a hospital because of her stroke…

Since Lyn is in bed bound, we arranged community medical van service to come pick us up to take her to the hospital. If we drive there, it only takes 10 minutes. But, because of this service and they need to pick up more people around the town, we left two hour prior to Lyn’s appointment.

The van service was pretty good. The driver knew how to handle people cannot move and who are in the wheel chair. He knew how to use life to put her in the van and used special seat belts.

So, once we left we were rolling to our adventure.

I was hoping Lyn might look around as she was in the van, but she slept through…

The van picked up a few more people and we arrived our destination! The Hospital!!! So, exciting!?!?

We went in and without waiting much, we were taken to see the doctor. He asked a few questions about Lyn. He decided to change her medications to see if she could stay awake more. Also, because of her bed sore challenge, he suggested using air pressure mattress. As her husband agreed with the mattress,  the doctor came back and said “now Lyn’s service has moved from regular home health service to hospice…”

I learned afterwards from a social worker in the hospice that most people go to hospice service because doctors determines that this person’s life expectancy is about 6months. I don’t know if her husband knew it or not, I didn’t know. Sometimes ignorant is a blessing…

We were happy about the new air mattress hoping that would take care of her bed sore. Until then, we tried to put her on side but had not worked well yet. A nurse had suggested to put a pillow on one side for a while and changed to the other side…But, I always thought that that would still create pressure on both side and worst case scenario,  it would actually create damage on her lower spine. But, you know doctors know as well as nurses know…

But, we were not for sure about going into to hospice. That meant our aid and nurses would change. We were worried they might not be as good as the one we had…

So, as we left from the doctor’s office, our adventure was still going because we needed to wait on the van. Her husband called in but we didn’t know when they would come pick us up…

There was a medical shopping center right next to the hospital, so her husband went to look at medical items as Lyn and I sat outside to wait on the van.  In several minutes later, her husband came back with a bag of animal cookies and a bag of cheese cracker.

That what we ate for our lunch including Lyn. It felt such a long time waiting on the van. I don’t know it was because it was so hot, so hungry, or Lyn wasn’t awake …?

We saw many vans looked like the one we supposed to ride…

I can honestly tell you, when the right van pulled in the parking lot, we were so happy! It didn’t take anything coming back to Lyn’s home.

All this happened matter of 5 hours but sure felt much longer adventure than that. Next time, if we got to go, we should take food and water.

How to Eat Pizza

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How to eat a slice of pizza…

How do you eat a slice of pizza???

I eat a slice of pizza by just grabbing it and put it in my mouth…

I know some people eat pizza with a folk and knife…

Here is how Lyn ate her pizza one day…

She was in her wheel chair at one evening.
She falls in a sleep sometimes in her chair. Her husband was gone to work so me and my friend were with Lyn.

We decided to eat pizza for dinner.

In spite of the delicious aroma of pizza, Lyn was just out. So, as we said the blessing on the food, we ate first. Then I was going to feed Lyn.

She opened her mouth but it was so small that I needed to cut pizza into about  1/8 inch by 1/8 inch size so that she could eat…It took about an hour to finish eating her slice of pizza…

That was something…

We may take it for granted that being able to eat is blessing…I am thankful to God I can eat pizza the way I eat…lol